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Meeting Reports 2004

National Osteoporosis and Related Bone Diseases ˜ National Resource Center
National Coordinating Panel Meeting

July 14, 2004
One Democracy Plaza
Bethesda, Maryland

Executive Summary

The National Institutes of Health (NIH) Osteoporosis and Related Bone Diseases National Resource Center was established by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) in 1994 to increase awareness, knowledge, and understanding of metabolic bone diseases among target audiences and to address informational gaps and at-risk but underserved populations. In September 2003, NIAMS renewed funding for the center under a 4-year contract and established a National Coordinating Panel to provide guidance to the Center, ensure collaboration and avoidance of redundant efforts, propose key messages for the Center to promote, and identify methods to evaluate the effectiveness of the Center's activities.

Members of the Panel include representatives of the seven Institutes and Offices that contribute to the contract. In addition to NIAMS, these are the National Institute of Child Health and Human Development (NICHD), National Institute of Dental and Craniofacial Research (NIDCR), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institute on Aging (NIA), NIH Office of Research on Women's Health (NIH-ORWH), and U.S. Department of Health and Human Services' Office on Women's Health (DHHS-OWH).

The Panel held its first meeting on July 14, 2004, at NIH offices at One Democracy Plaza, Bethesda, MD. In addition to Panel members, the meeting brought together other Federal guests and outside guest experts in the field of bone health and metabolic bone diseases.

The meeting was organized into four sections:

  1. A Report on the NIH Resource Center - This overview provided Panel members and guest experts with information about the history of the Center from inception through its first 9 years of achievements, an overview of the current contract and role of the Panel, and review of current Center projects and progress to date under the contract.
  2. Reports From the Federal Partners on Related Activities and Needs - In this series of Panel reports and discussion, members described their current information and outreach priorities, audiences, publications, and programs related to osteoporosis and other metabolic bone diseases and proposed new topics and collaborative opportunities that the Center might address in future planning.
  3. Reports From The Paget Foundation and Osteogenesis Imperfecta Foundation - These reports focused on materials development and promotion activities in support of other metabolic bone diseases that the Center is engaged in with outside organizations who provide expertise in Paget's disease of bone and osteogenesis imperfecta.
  4. Special Presentation: Bone Health and Osteoporosis: A Report of the Surgeon General - This presentation provided background on the development of a new, eagerly anticipated Surgeon General's report, which is expected to be released in the fall of 2004. The presentation was followed by a general discussion of the role of the Center, Panel members, and guest experts in helping to disseminate the report and its messages to diverse public and professional audiences.