Meeting Reports 2002

NIH Muscular Dystrophy Research Task Force Agenda

May 15-16, 2002 (historical)

15 May 2002
7:00 PM	Welcome and Introductions
7:30 PM	Meeting Goals
8:00 PM	Background on NIH Muscular Dystrophy Research and Related Initiatives
8:30 PM	Review of Thursday Agenda
8:45 PM	Discussion of Goals and Topics
9:00 PM	Adjourn
16 May 2002
8:30 AM	Review Agenda
8:45 AM	Resources to further Muscular Dystrophy Research What's needed Making resources available to community Researcher development Promoting innovative approaches
10:15 AM	Coordination of Research and Researchers Promoting common dictionary, comparability and compatibility of data Diagnostic criteria and clinical evaluation
11:45 AM	Lunch
12:45 PM	Promoting Clinical Studies and Trials: Support by NIH, health voluntary groups, and industry Drug testing and development - a challenge for rare diseases Behavioral and ethnicity issues Ethical issues and barriers
2:30 PM	Summarize
3:00 PM	Adjourn