何謂系統性紅斑狼瘡（狼瘡）？ 系統性紅斑狼瘡（狼瘡）是一種慢性（長期）自身免疫性疾病，可影響多個身體部位，包括： 皮膚。 關節。 心臟。 肺。 腎臟。 大腦。 在正常情況下，免疫系統會幫助保護身體免於發生感染和疾病。但當發生狼瘡時，免疫系統攻擊自身組織。這樣的攻擊會造成炎症，而且在某些情況下會造成永久性的組織損傷。 如果您患有狼瘡，則您可能有時候發病（急性發作），有時候健康（緩解）。狼瘡急性發作時的程度可輕可重，而且也沒有一定的規律。但如果接受治療，許多狼瘡患者可以管理這一疾病。
What is Raynaud’s phenomenon? Raynaud’s phenomenon is a condition that causes the blood vessels in the hands and feet to narrow, decreasing blood flow. When this happens, parts of the body—usually the fingers and toes—become cold and numb, and change color (usually, to white or blue). An attack usually happens from exposure to cold or stress.
What is systemic lupus erythematosus (lupus)? Systemic lupus erythematosus (lupus) is a chronic (long-lasting) autoimmune disease that can affect many parts of the body, including the: Skin. Joints. Heart. Lungs. Kidneys. Brain. Lupus happens when the immune system, which normally helps protect the body from infection and disease, attacks its own tissues. This attack causes inflammation and, in some cases, permanent tissue damage. If you have lupus, you may have times of illness (flares) and times of wellness (remission). Lupus flares can be mild to serious, and they do not follow a pattern. However, with treatment, many people with lupus
What is fibrous dysplasia? Fibrous dysplasia happens when abnormal fibrous (scar-like) tissue replaces healthy bone. The fibrous tissue weakens the bone over time, which can lead to: Broken bones. Bones that are misshapen (bowed or crooked). The disease can affect any bone in the body. Some people have no symptoms or only a few symptoms. Other people may have more symptoms. Although there is no cure for fibrous dysplasia, treatments may help to lessen pain, and physical therapy may help strengthen muscle and improve movement.
What is pachyonychia congenita? Pachyonychia congenita (PC) is a very rare genetic disorder that affects the skin and nails. Most people have thickened nails and calluses on the bottom of the feet. Painful calluses on the soles can make walking difficult. Because of the pain, some people rely on a cane, crutches, or a wheelchair to help with walking.