NIAMS-hosted Twitter Chats
Juvenile Arthritis Twitter Chat
July 25, 2016
In recognition of Juvenile Arthritis Awareness Month, NIAMS hosted a Twitter chat on juvenile arthritis (JA) on Monday, July 25, 2016. For this chat, NIAMS partnered with the Arthritis Foundation, the American College of Rheumatology and the Childhood Arthritis and Rheumatology Research Alliance (CARRA). Robert Colbert, M.D., Ph.D., Chief of the NIAMS Pediatric Translational Research Branch, provided subject matter expertise. Topics in the chat included symptoms, treatments, life impact, patient support, research and resources for families affected by JA.
Nearly 300,000 American children have a form of JA. Studies have led to more effective treatments in recent years, allowing many children with the disease to live without disability. Current research is making progress in identifying the genetic factors, biomarkers and mechanisms of inflammation in JA.
Using the hashtag #JAchatNIH, the chat reached 1,026,336 Twitter users, making 6,088,711 impressions. The chat is archived at https/storify.com/NIAMS/JAchatNIH.
Osteoporosis Facebook Q&A
Thursday, May 26, 2016
Partnering with the National Osteoporosis Foundation and the National Bone Health Alliance, NIAMS hosted a bilingual Facebook Q&A about osteoporosis on May 26, 2016. This was the first Facebook chat for NIAMS, and the first bilingual (English/Spanish) Facebook event by any NIH Institute or Center. The partners solicited questions from Facebook followers for two weeks before the event and addressed those and “live” questions during the Q&A session. Topics discussed in the chat included treatments, supplements, comorbid conditions and osteoporosis in men. Joan McGowan, Ph.D., Director of the NIAMS Division of Musculoskeletal Diseases (DMD), and Lee Alekel, Ph.D., a program director in the DMD, served as subject matter experts. Ernesto Canalis, M.D., from the University of Connecticut, gave clinical input and assisted with Spanish translations.
The chat reached nearly 5,000 Facebook users. An archive of the chat is available at https://www.facebook.com/events/1585703731742560.
Psoriasis Twitter Chat
October 29, 2015
In recognition of World Psoriasis Day, the NIAMS hosted a Twitter chat on psoriasis on October 29, 2015. The Institute partnered with the National Heart, Lung and Blood Institute; the American Academy of Dermatology; and the National Psoriasis Foundation to hold the chat. Ricardo Cibotti, Ph.D., of the NIAMS Division of Skin and Rheumatic Diseases, served as a subject matter expert. Topics in the chat included causes and symptoms, treatments, life impact, comorbidities, clinical trials, and ongoing research and advances. The NIAMS and partnering organizations also shared resources.
Psoriasis affects more than 5 million adults in the United States, and can occur in both children and adults. Research has suggested that people with psoriasis may be at greater risk for cardiovascular problems, especially if the psoriasis is severe, as well as obesity, high blood pressure, and diabetes. One complication of the disease known as psoriatic arthritis can cause permanent joint damage if not treated.
Using the hashtag #PsoriasisChat, the chat reached 1,099,395 Twitter users, with over 4,398,596 impressions. The chat is archived at https://storify.com/NIAMS/psoriasischat.
Vasculitis Twitter Chat
May 13, 2015
On May 13, 2015, NIAMS hosted a Twitter chat on the topic of vasculitis using the hashtag #NIHVasculitisChat. The chat focused on the various forms of vasculitis, symptoms and treatments, and current research. The audience also learned about how to participate in NIH clinical studies. Jim Witter, M.D., Ph.D., and Peter Grayson, M.D., M.Sc., served as NIAMS subject matter experts. The National Human Genome Research Institute and the National Center for Advancing Translational Sciences partnered with NIAMS in the chat. Investigators from the Vasculitis Clinical Research Consortium and members of the Vasculitis Foundation and American Behçet’s Disease Association also participated.
Vasculitis includes a number of autoimmune diseases that cause inflammation of the blood vessels. These diseases, which include Behçet’s disease, giant cell arteritis, and granulomatosis with polyangiitis, can affect many other organs, as well.
#NIHVasculitisChat reached 40,431 Twitter users with 713,813 impressions. The chat is archived at https://storify.com/NIAMS/psoriasischat.
Bilingual Lupus Twitter Chat
September 30, 2014
In recognition of Hispanic Heritage Month, NIAMS hosted a Twitter chat in English and Spanish on September 30, 2014, with the hashtag #NIAMSLupusChat. The chat focused on lupus, a disease that disproportionately affects Hispanic women. Tweets were posted in both languages, and questions were answered in the language in which they were received. During the chat, Drs. Mariana Kaplan (Chief of the NIAMS Systemic Autoimmunity Branch) and Susana Serrate-Sztein (Director of the NIAMS Division of Skin and Rheumatic Diseases) shared the latest advances in lupus research. Dr. Irene Blanco, Assistant Professor of Rheumatology at Albert Einstein College of Medicine of Yeshiva University, also participated and responded to questions. Other NIH Institutes and Centers, as well as offices within the Department of Health and Human Services (HHS), including the HHS Office on Women's Health, also participated.
The hour-long chat generated almost 600 tweets from more than 100 contributors, and reached a potential 1.2 million Twitter users with over 11 million impressions. This bilingual Twitter chat was part of the Institute’s ongoing efforts to share health information and resources with underserved communities. The chat is archived at https://storify.com/search?q=%23NIAMSLupusChat.
NIAMS Twitter Presentation: Dr. Katz C-SPAN Interview
March 13, 2014
On March 13, 2014, the NIAMS hosted a Twitter presentation featuring the questions and answers from a February 21 interview given by Dr. Katz on the C-SPAN program Washington Journal. Questions covered topics such as the heritability of osteoporosis and osteoarthritis; the relationship between the NIH and pharmaceutical companies; the purpose of NIH clinical research; and the causes of, and research on, various diseases. The presentation reached a potential audience of 278,269 Twitter users. The presentation is archived at https://storify.com/NIAMS/niams-director-stephen-i-katz-on-c-span-skatzcspan.
PROMIS Twitter Chat
December 10, 2013
NIAMS hosted its first-ever Twitter chat on December 10, 2013. Using the hashtag #PROMISchat, the chat highlighted the Patient Reported Outcomes Measurement Information System (PROMIS), an initiative supported by the NIAMS and other NIH Institutes through the NIH Common Fund. PROMIS® experts were on hand to answer questions, including Jim Witter, M.D., Ph.D., from the NIAMS Division of Skin and Rheumatic Diseases. PROMIS® is a system of highly reliable, precise measures of patient-reported health statuses for physical, mental and social well-being. PROMIS® tools can accurately measure what patients are able to do and how they feel.
#PROMISchat reached 300,184 potential impressions. The chat is archived at https://storify.com/search?q=%23PROMISchat.
Other Twitter Chats in which NIAMS Participated
Twitter Chat on Arthritis with Dr. Richard Besser of ABC News
May 17, 2016
ABC News Chief Health and Medical Editor, Dr. Richard Besser, moderated a Twitter chat on arthritis on May 17, 2016. The chat covered many topics, including the different types of arthritis, causes, treatments, complementary and alternative therapeutic approaches, and arthritis in children. The 492 contributors to the chat posted over 1,500 tweets, reaching an audience of over 1 million. NIAMS tweets made 75,800 impressions. Tweets from the chat can be viewed by searching on Twitter for #abcDrBChat and scrolling down to the tweets for May 17, 2016.
Twitter Chat on Minority Health (NIMHD)
April 27, 2016
A Twitter chat devoted to health issues among minority populations was hosted by the NIH’s National Institute on Minority Health and Health Disparities (NIMHD) on April 27, 2016. This chat focused on increasing diversity among clinical research participants. NIAMS tweets during the chat made over 325,000 impressions. An archive of the chat is available at https://storify.com/NIMHD/minorityresearch-twitter-chat.
Twitter Chat on Minority Women’s Health (FDAWomen)
April 19, 2016
The U.S. Food and Drug Administration (FDA) held a bilingual (English/Spanish) Twitter chat on minority women’s health on April 19, 2016. NIAMS tweeted about its Spanish and Asian language publications and health issues of special concern to minority women, including lupus, fibromyalgia and osteoporosis. Tweets for the chat can be viewed by searching for #FDAHealthChat on Twitter and scrolling down to the tweets for April 19, 2016.
Twitter Chat on Rare Diseases with Dr. Richard Besser of ABC News
March 1, 2016
NIAMS participated in a Twitter chat on rare diseases moderated by ABC News Chief Health and Medical Editor, Dr. Richard Besser (#abcDrBchat). NIH and the National Organization for Rare Disorders also participated in the chat, which focused on the different types of rare diseases, difficulties associated with diagnosis and treatment, the impact of these diseases, and specific areas of research. The chat made a total of 15,416,449 impressions. NIAMS posted 19 tweets about rare diseases that fall within the Institute’s portfolio, including Behçet’s disease, autoinflammatory conditions, epidermolysis bullosa, and vasculitis. Tweets from the chat can be viewed by searching on Twitter for #abcDrBChat and scrolling down to the tweets for March 1, 2016.
NIH Twitter Chat on Rare Diseases
February 22, 2016
NIH hosted a Twitter chat on rare diseases on February 22, 2016. NIAMS provided information on rare diseases that fall within the Institute’s mission, including autoinflammatory diseases, vasculitis, osteogenesis imperfecta and epidermolysis bullosa. NIH Director Francis Collins, M.D., Ph.D., participated in the chat, which reached over 1.5 million Twitter users. NIAMS tweets made over 65,000 impressions. Tweets from the chat can be viewed by searching on Twitter for #NIHChat and scrolling down to the tweets for February 22, 2016.
Twitter Chat on Back Pain Prevention and Treatment
December 15, 2015
NIAMS participated in a chat on back pain moderated by ABC News Chief Health and Medical Editor, Dr. Richard Besser (#abcDrBchat) and hosted by the National Institute of Neurological Disorders and Stroke (NINDS). The National Center for Complementary and Integrative Health (NCCIH) also participated in the chat. The chat centered on ways to prevent and treat back pain, which is one of the most common medical conditions in the United States. Overall, the chat reached 8,598,590 impressions. NIAMS posted tweets about the prevalence of back pain, prevention strategies, treatment options, clinical trials and research. NIAMS was among the top three tweeters in the number of mentions during the chat. This chat is archived at https://storify.com/NINDSnews/abcdrbchat-back-pain-twitter-chat.
Twitter Chat on Chronic Pain
September 22, 2015
Dr. Richard Besser moderated this chat focusing on chronic pain. NIAMS posted tweets highlighting the Institute’s health information and research in diseases that cause chronic pain, including fibromyalgia, various forms of arthritis, back pain, and lupus. The NINDS and the National Institute of Dental and Craniofacial Research (NIDCR) also participated in the chat. Using the hashtag #abcDrBchat, the chat reached an estimated total audience of more than 900,000 Twitter users, with over 41 million impressions. No archive of this chat is available.
Twitter Chat on Arthritis with Dr. Richard Besser
July 21, 2015
This chat on arthritis was moderated by Dr. Richard Besser. NIAMS was invited to join the chat as an expert guest. Other organizations that participated included the NCCIH, the Centers for Disease Control and Prevention’s Office of Chronic Disease Prevention and Health Promotion, the Cleveland Clinic, and the Arthritis Foundation (AF), More than 1,500 tweets were sent using the #abcDrBchat hashtag. These tweets discussed the various types and prevalence of arthritis, as well as symptoms, diagnosis and treatment options. NIAMS tweets reached a potential audience of more than 28,000 Twitter followers. No archive of this chat is available.
Twitter Chat on Arthritis with Liz Szabo
May 15, 2014
This chat was moderated by Ms. Liz Szabo, a medical reporter with USA Today. Drs. Jim Witter (NIAMS Division of Skin and Rheumatic Diseases) and Gayle Lester (NIAMS Division of Musculoskeletal Diseases) joined colleagues from the National Center for Complementary and Alternative Medicine (now known as the NCCIH), the National Institute on Aging, the Mayo Clinic, the AF, and the American College of Rheumatology (ACR) to answer questions about osteoarthritis, rheumatoid arthritis, and gout. The event reached a potential audience of more than 21 million Twitter users. No archive of this chat is available.
PBS News Hour Twitter Chat on Arthritis
January 16, 2014
The NIAMS was joined by the CDC, the Mayo Clinic, the AF and the ACR to answer questions tweeted from the public with the hashtag #NewsHourChat. NCCIH also participated by posting tweets about complementary and alternative approaches to treating arthritis. The chat “trended” on Twitter, becoming one of the most popular conversations at the time. The 1,133 tweets in the chat, posted by 220 participants, were viewed more than 53 million times by Twitter users. NIAMS was listed as one of the top influencers in the chat. The chat is archived at http://www.pbs.org/newshour/rundown/twitter-chat-ask-your-arthritis-questions/.