Alopecia Areata

National Alopecia Areata Registry

The purpose of the registry is to collect patient information and blood samples from people with alopecia areata.

The registry is enrolling patients.
Researchers may request use of registry information.
The last year of contract funding from NIAMS to develop the registry was 2008.

Juvenile Idiopathic Arthritis

Research Registry for Juvenile Idiopathic Arthritis (JIA)

The purpose of the registry is to collect patient information on families with single or multiple affected sibling pairs. DNA will be obtained and stored on all registry patients and family members.

Researchers may request use of registry information.
The last year of contract funding from NIAMS to develop the registry was 2009.

Contact:
Susan D. Thompson, Ph.D.
Cincinnati Children’s Hospital Medical Center
513-636-3899
susan.thompson@cchmc.org

Lupus

Lupus Family Registry and Repository

The purpose of the registry is to collect patient information on families with two or more members diagnosed with Systemic Lupus Erythematosus (SLE). The registry will collect clinical data, serum, plasma, and DNA.

The registry is enrolling patients.
Researchers may request use of registry information.
The last year of contract funding from NIAMS to develop the registry was 2007. NIAMS now contributes to the registry through a Program grant (P30AR053483).

Muscular Dystrophy

National Registry for Myotonic Dystrophy and Facioscapulohumeral Dystrophy Patients and Family Members

The purpose of the registry is to connect people with myotonic dystrophy (DM) and facioscapulohumeral dystrophy (FSHD) with researchers studying these diseases. The registry will offer individuals with DM and FSHD an opportunity to participate in research that focuses on their diseases.

The registry is enrolling patients.
Researchers may request use of registry information.
The last year of contract funding from NIAMS to develop the registry was 2009.

Neonatal Lupus

Research Registry for Neonatal Lupus

The purpose of the registry is to collect information on women and infants affected by neonatal lupus as well as other family members who may be healthy.

The registry is enrolling patients.
Researchers may request use of registry information.
The last year of contract funding from NIAMS to develop the registry was 2009.

Osteoarthritis

Osteoarthritis Initiative Biospecimens

Biospecimens have been collected from OAI study participants at the baseline and at 12-month, 18-month (a limited number of subjects), 24-month, 30-month (a limited number of subjects), 36-month, 48-month, and 72-month follow-up visits. At present, biospecimens for the entire cohort from the baseline and 12-month, 18-month, 24-month, 30-month, 36-month, and 48-month follow-up visits are available for use. These biospecimens include serum, plasma, urine, and DNA.

Policies and procedures have been developed for access to these specimens and are posted on the NIAMS OAI website and OAI Online. Interested investigators are encouraged to apply for use of these limited resources.

Rheumatoid Arthritis

Rheumatoid Arthritis in African Americans Registry

This registry, Consortium for the Longitudinal Evaluations of African Americans with Early Rheumatoid Arthritis (CLEAR), aims to collect clinical and x-ray data and DNA to help scientists analyze genetic and nongenetic factors that might predict disease course and outcomes of rheumatoid arthritis in this population.

The registry is enrolling patients.
Researchers may request use of registry information.
The last year of contract funding from NIAMS to develop the registry was 2009.