Meeting Reports for 2005

NIH Osteoporosis and Related Bone Diseases ~ National Resource Center
Coordinating Panel Meeting

PDF Version

Building 31
National Institutes of Health
Bethesda, Maryland

July 12, 2005 (historical)

Executive Summary

The National Institutes of Health Osteoporosis and Related Bone Diseases ~ National Resource Center was established by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) in 1994 to increase awareness, knowledge, and understanding of metabolic bone diseases among target audiences and to address information gaps and at-risk but underserved populations. In September 2003, NIAMS renewed funding for the NIH Resource Center under a 4-year contract, and established a National Coordinating Panel to provide guidance to the NIH Resource Center, ensure collaboration and avoidance of redundant efforts, propose key messages for the NIH Resource Center to promote, and identify methods to evaluate the effectiveness of the NIH Resource Center's activities.

Members of the Panel include representatives of the seven Institutes and Offices that contribute to the contract. In addition to the NIAMS, these are the National Institute of Child Health and Human Development (NICHD), National Institute of Dental and Craniofacial Research (NIDCR), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institute on Aging (NIA), NIH Office of Research on Women's Health (NIH-ORWH), and U.S. Department of Health and Human Services' Office on Women's Health (DHHS-OWH).

The Panel held its second meeting on July 12, 2005, on the campus of the NIH, Building 31, Bethesda, MD. In addition to Panel members, the meeting brought together other Federal guests and outside guest experts in the field of bone health and metabolic bone diseases.

The meeting was organized into five sections:

Report on the NIH Resource Center

This report provided Panel members and guest experts with a review of current NIH Resource Center projects and progress during the second year of the 4-year contract. Activities were grouped into four categories: inquiry response, materials development, promotion and outreach, and exhibits.

Reports from the Paget Foundation and Osteogenesis Imperfecta Foundation

Panel members and guest experts received updates on materials development and special initiatives by the Paget Foundation and Osteogenesis Imperfecta Foundation, which provided expertise and assistance to the NIH Resource Center on projects related to other bone diseases, specifically Paget's disease of bone and osteogenesis imperfecta.

NIH Resource Center Web Site: Resource Page Demonstration

This presentation provided an overview of plans to redesign the NIH Resource Center Web site and increase access to Federal resources related to bone diseases by creating a special resource page with hot links to these resources. The presentation included a demonstration of how the resource page would look and work.

Next Steps: Bone Health and Osteoporosis: A Report of the Surgeon General

In April 2005, the NIH Resource Center assumed responsibility for promoting the Surgeon General's report, released in October 2004, and handling orders for related materials. This report described the transition and outlined a preliminary plan for promoting the report and its messages to diverse audiences over the next 2 years. Panel members and guests were invited to comment and provide additional ideas for the plan.

Additional Plans and Ideas: NIH Resource Center Identity and Outreach

This final presentation highlighted the NIH Resource Center as the only trans-NIH clearinghouse or resource center, and emphasized the importance of creating and maintaining a central identity and coordinated outreach for the Government's extensive resources on bone diseases. The presentation was followed by a general discussion during which Panel members and guests identified additional ways the NIH Resource Center could meet these objectives.