Meeting Reports 2002

Workshop on the Burden of Skin Diseases Agenda

September 4-5, 2002 (historical)

Lister Hill Auditorium, Building 38A
National Institutes of Health
Bethesda, Maryland

Wednesday, September 4, 2002

7:00-8:00 A.M Registration

8:00-8:05 Opening Remarks
Dr. Alan N. Moshell, Chief
Skin Diseases Branch, NIAMS

8:05-8:15 Establishing Parameters for the Workshop
Dr. Irwin M. Freedberg, Chair

8:15-8:30 Overview: Scope of Disease Burden and Need for Definition/Taxonomy
Dr. Mary-Margaret Chren

8:30-9:30 Session I: Traditional Measurements of Burden: Including Economic Impact, Morbidity, Mortality, and Disease

Dr. James A. Schuttinga
Dr. Martin Brown
Dr. Boris D. Lushniak
Dr. Martin Weinstock

9:30-10:30 Session I: Discussion

10:30-10:45 Break

10:45-12:05 Session II: Personal and Family Factors: Education/Career, Children and Families (Including Family Planning), Interpersonal Relationships

Dr. Philip Fleckman
Ms. Shelley Diamond
Ms. Tara Rolstad
Ms. Sharon Terry

12:05-1:05 P.M. Lunch

1:05-2:05 Session II: Discussion

2:05-3:25 Session III: Quality of Life and Measurement Instruments

Ms. Claire Snyder
Dr. Lynn Drake
Dr. Wilma Fowler Bergfeld
Dr. Mary-Margaret Chren

3:25-3:40 Break

3:40-4:40 Session III: Discussion

4:40-4:50 Chair's Closing/Adjourn for the Day

Thursday, September 5, 2002

8:30-8:35 A.M. Remarks by Dr. Stephen I. Katz
(Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases)

8:35-9:55 Session IV: Societal Impact

Dr. Dean Jamison
Ms. LaDonna Williams
Dr. Vicky Holets Whittemore
Dr. Robert Stern

9:55-10:55 Session IV Discussion

10:55-11:10 Break

11:10-12:40 Session V: Available Data Sets and Data Needs and Data Assessment

Ms. Reva Lawrence
Dr. David J. Margolis
Dr. Steven R. Feldman
Ms. Vicki L. Burt
Dr. Alison Ehrlich
Dr. Robyn Thomas

12:40-1:40 P.M. Lunch

1:40-2:40 Session V: Discussion

2:40 -3:00 Workshop Wrap-up
Dr. Irwin M. Freedberg

3:00 Adjourn

3:00-4:00 Planning Workshop Summary


Dr. Rajesh Balkrishnan
Dr. Sarah L. Chamlin
Dr. Suephy C. Chen
Dr. Richard Clark
Dr. Alan B. Fleischer
Dr. Marie-Louise Johnson
Dr. Gerald Lazarus
Dr. Wendy Max
Dr. Peter Muennig
Dr. Stephen Rapp
Dr. Dorothy Rice
Dr. Scott Sicherer